Here is an email I received from the previously mentioned Rolande.

Anyone notice the date in question?

Family meeting in Banff, May 29, 2013
May 6, 2013 8:03 AM
To: k merle

Dear Kirsten,

I am unsure if this is still an email address you use but am taking a chance in writing to you. I hope you and your family are well.  I am still working at the Canadian CJD Surveillance System and still enjoying my work very much.

I will be attending a prion meeting the last week of May, in Banff.  There, I will have the opportunity to meet and discuss with people who work with CJD patients and their families.  I have volunteered to help the organisers and noticed there is a family meeting on the 29th. I thought about letting you know, if someone in our family is interested in attending.

I am sending you the link, in case you are interested.

I wish you a great week and hope to see you in Banff.

Kind regards,